Author: Sydney Flowers

Master Plan: How campus investment will boost AHS master’s programs

Jan. 15, 2024 | Ethan Simmons

Revamped online degrees are expected to expand the accessibility of AHS programs worldwide, reaching new students from underrepresented and nontraditional backgrounds

RST interim department head Bill Stewart, left, chats with MHA director Lynne Barnes and MPH director Pedro Hallal (Photo by Ethan Simmons)

Three master’s programs in the College of Applied Health Sciences are undergoing transformations for the digital age.

After receiving a $2.035 million award from the University of Illinois Investment for Growth program, AHS faculty, administrators and industry partners will collaborate to create online versions of the Master of Public Health and Master of Health Administration degrees. Additionally, the Master of Recreation, Sport and Tourism online degree will be restructured into three specialized programs: recreation and park management, sport management and administration, and tourism and event management.

The revamped online degrees are expected to expand the accessibility of AHS programs worldwide, reaching new students from underrepresented and nontraditional backgrounds.

“Going global has been a priority of this university for years,” said Pedro Hallal, Alvin M. and Ruth L. Sandall professor in the Department of Kinesiology and Community Health and director of the MPH program. “So now going global is a priority of this program as well.”

The addition of “stackable certificates” across each discipline will attract nontraditional students looking to boost their knowledge as well as mid-career professionals seeking expertise in their chosen industry.

Each program is committed to including new voices in their online instructional material, mainly experienced professionals working in the respective fields.

“It’ll be a nice blend,” said Lynne Barnes, the longtime top Carle Foundation Hospital administrator who was hired as director of the MHA program this fall. “We’ll have professors who really understand the knowledge base of the field, and we’ll also have clinical people who are working in the field doing the teaching, just like we do for the in-person program.”

The creation of new online master’s degree formats will start with collaboration with AHS’ online learning team. The online MPH program and restructured RST online master’s degrees will begin enrolling students in fall 2025; the online MHA program will debut in fall 2026.

“We’re taking the ‘growth’ term very seriously,” said Professor Bill Stewart, interim department head for RST. “This is a long-term investment for us, not just a one-off thing.”

MPH: ‘The perfect storm’ for growth 

To populations around the globe, the COVID-19 pandemic was a clarion call to the vital importance of public health infrastructure.

The awakening clearly reached young people pondering their life paths: According to data from the Association of Schools and Programs of Public Health, applications to public health graduate degree programs increased 40 percent from 2020 to 2021.

“It’s so much easier now to choose a career related to public health,” said KCH Associate Professor Andi Schwingel, who is working alongside Hallal in developing the online coursework.

“Going global has been a priority of this university for years. So now going global is a priority of this program as well.”

Pedro Hallal

HK Professor, director of the MPH program

For the University of Illinois’ MPH program, the decision to create an online program is also a matter of maturity, Hallal said. Four years have elapsed since the program obtained accreditation from the Council on Education for Public Health.

“Some people in your neighborhood will add a security camera, and you don’t think it’s important until your house gets robbed, and then you see, ‘Oh, I needed that camera,’” Hallal said. “I think that is exactly what happened with public health.

“It was the perfect storm for our time to grow.”

The work ahead will be rigorous, with 20-plus courses awaiting development. Faculty plan to work with external partners, such as public health professionals, to create new course content. And it will be suited to the future landscape of public health, Hallal said: How might climate change and global warming transform health needs? How can we address the coexistence of infectious diseases with chronic conditions, like hypertension and diabetes?

A target for the MPH online expansion is the non-traditional student population. The MPH program will offer six certificates: epidemiology, biostatistics, public health, one health, physical activity and health and health promotion.

“It’s the time for us to reach nontraditional students, we feel ready for it,” Schwingel said. “We want to keep the rigor, the quality that we’ve been giving students in their residential program to the online space as well.”

MHA: Making health administration accessible

The MHA program at Illinois is designed to prepare students for leadership in the healthcare industry.

What the MHA program has recently observed, according to KCH Assistant Professor Mina Raj, is an influx of requests for an online equivalent, especially among mid-career healthcare administrators.

“The pandemic has made salient how important the healthcare system is, and how important it is to have administrators who can respond to public health emergencies and other unpredictable situations,” Raj said.

The overriding goal for the online degree is accessibility, Raj said: What material can be packaged into a four-week or eight-week course? The MHA online degree will offer three professional certificates: health finance, healthcare quality and health informatics.

“I think for this group of professionals it’s really about giving them the context and rationale behind why certain decisions are made as administrators or within a healthcare organization, as well as the tools to anticipate the impacts or consequences of various administrative decisions,” Raj said. “We have faculty with different expertise, different professional backgrounds, and everyone is excited to teach these courses.”

The work has already begun for Barnes, who wants to incorporate seasoned industry experts into course content. Barnes came to the university after retiring from a 45-year career at Carle Foundation Hospital.

“I hope to use real clinicians, people doing the work like at Christie Clinic, Carle and OSF Healthcare to be part of the lectures, so that the students who are online, all over the world and all over the United States experience instruction through people who are actually doing the work,” Barnes said.

RST: Degrees for specialized industries

The Department of Recreation, Sport and Tourism has been a leader in online education, debuting the first online master’s program in the discipline back in 2008.

But there wasn’t much fanfare, Stewart said. Online degrees were seen as “second-class programs” two decades ago.

“We were there at the beginning of the front to move online learning into a respectable degree process of education,” Stewart said.

Today, recreation, sport and tourism combine for an estimated $90 billion global set of industries. The pandemic resulted in a surge of public interest in leisure time and nature exploration, opening up new opportunities for professionals in the field, Stewart said.

“[RST] is about what we do in our free time to extend who we are and add value to our lives,” Stewart said. “We’ve come to embrace our needs for leisure-time activities in the last two years in ways that enhance our well-being and nurture our souls.”

The upcoming split of the current online master’s program into three tracks is a response to internal and external trends. Enrollment in the online MS in RST has plateaued in recent years, while other institutions have introduced their own online degrees in the discipline.

Online degrees were seen as “second-class programs” two decades ago, but no longer, said Bill Stewart, center. (Photo by Ethan Simmons)

Meanwhile, the demands of the industry have become more specialized over time.

“There’s still a need for the generalist degree, but because of the growth, we are finding professionals out there who need more help with the specialty,” Stewart said.

Students and mid-career professionals will be able to enroll in a new slate of RST certificates in high-demand topics, including inclusive design, agricultural tourism, sport analytics, e-sport administration, and diversity, equity and inclusion.

The department is in the process of searching for a director of the RST online program, Stewart said, while tapping into a vast network of alumni to help develop new course content.

“Our alumni value the friends and faculty they came to know as students and find various ways to give back to the department,” Stewart said. “Many of our alums are leading remarkable careers in contexts related to recreation, sport and tourism; they readily share their expertise through assistance in course development, guest lectures, creating internship opportunities for our current students, and in some cases, teaching classes for us.

“Our students come here because they care about making people feel better, their well-being, their sense of community and health. They want to give back to the community and they want to give back to the department that gave them this path in life.”

Editor’s note:

To reach Ethan Simmons, email ecsimmon@illinois.edu.
 

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Global opportunities

April 03, 2024 | Anna Flanagan

The College of Applied Health Sciences boasts a diverse student body in which 33 percent of the students belong to historically underrepresented racial and ethnic groups and 149 students are from other countries

Jemimah Bakare, right, Emmanuel Dubure and Byron Juma, left, are parts of a growing contingent of Illinois students from Africa (Photo by Michelle Hassel)

The Republic of Ghana has the second-largest population in West Africa. Until recently, Emmanuel Dubure was one of its more than 32 million inhabitants. He said the part of the country where he grew up faces many health challenges, and he wanted to develop the expertise to make a difference. He chose to study in the United States, he said, because “the U.S. has the best educational system at the graduate level and is a hub for research and experts in many fields.”

Dubure aspires to work at the community level to improve health back home. He learned of Illinois on LinkedIn and liked the idea of obtaining his master’s degree in community health from a well-ranked Research 1 university. 

“Most importantly, I chose to come here because the College of Applied Health Sciences had faculty doing good research in my area of interest, which is the use of nutrition education to improve health, particularly in relation to chronic conditions,” he said.

Dubure described his experience at Illinois as “amazing” and said he would strongly recommend it to other international students.

“I have met a lot of wonderful people, both students and professors. The environment here is very stimulating and supportive of learning,” he said. “AHS is very multicultural, which gives you an opportunity to learn about different cultures. It also helps you feel at home because you meet other people from your home country.”

A common sense of humanity

The University of Illinois Urbana-Champaign boasts one of the largest international student populations among public institutions in the United States. According to the university’s Vision 2030 Global Strategy document, the first international students arrived on campus just four years after the university was founded. In 1907, the University of Illinois Urbana-Champaign became the first university in the nation to create the position of international student advisor, an early recognition of the benefits of worldwide perspectives in education and scholarship. 

Marta Schneider, associate director for global communication at Illinois International, said the university’s global strategy puts a high priority on intentional engagement in Global South countries. 

“The number of students from the African continent have indeed been increasing, with Nigeria being among the top 10 represented countries at Illinois in 2021 and 2022,” she said. “The university also is committing resources to increasing ties with Latin America and underrepresented parts of Asia.”

Bill Stewart, interim head of the Department of Recreation, Sport and Tourism, thinks encouraging international enrollments is a good idea.

“A world-class university needs a world-class student body to prepare future professionals for careers that will involve advancing relationships across international and cultural boundaries,” he said. “International students elevate class discussions and activities and research programs by sharing insights and cultural values.”

As a result, he adds, domestic students often better understand cultural differences and similarities and reflect on their own cultural heritage. International students can increase understanding of a common sense of humanity.

This has certainly been the case for Sandraluz Lara-Cinisomo, associate professor of kinesiology and community health. Her research addresses disparities in the mental health of women and mothers in different racial, ethnic and immigrant groups and the military. In her Laboratory for Emotion and Stress Assessment, she has graduate students from Nigeria, Ethiopia and The Republic of The Gambia. She said the insights that international students provide on perinatal mental health disparities are critical for addressing the diverse needs of mothers not only globally but also within the United States.

The University of Illinois Urbana-Champaign is a prestigious institution, and I am extremely proud of being a student here. I wouldn’t want other international students to miss out on these crucial opportunities.

MaryEllen Mendy

Doctoral candidate, Community Health

“International students have lived experiences that are valuable when considering risk factors for perinatal mental health, barriers to care and innovative strategies that respect diverse communities’ cultural and linguistic needs,” Lara-Cinisomo said. 

Domestic students also benefit from learning, she added, that while public health crises abroad may appear identical to ones in the United States, they may actually involve layers of complex cultural and political systems that aren’t observed here.

One of Lara-Cinisomo’s mentees, Mary Ellen Mendy, hails from the smallest country within mainland Africa, the Republic of The Gambia. Women in The Gambia face many challenges to their physical and mental health. After completing her Ph.D. in community health, Mendy hopes to apply all that she has learned from this program and her Master of Public Health program at the University of Illinois Springfield to making a difference back home.

“The skills I am developing are already paving the way for my future career as a researcher,” Mendy said. “I have received so much training in the Laboratory for Emotion and Stress Assessment lab, which I greatly value.”

Mendy said she already has recommended the program to friends back in The Gambia: “The University of Illinois Urbana-Champaign is a prestigious institution, and I am extremely proud of being a student here. I wouldn’t want other international students to miss out on these crucial opportunities.”

A wholehearted recommendation

Like their domestic colleagues, international students also benefit from the exposure to different cultures. Kenyan student Byron Juma said he has seen the months fly by as he’s grown “leaps and bounds” from his interactions with students from different parts of the world.

“I have taken classes from different departments and appreciated the opportunities to interact with students from diverse academic and social backgrounds and nationalities,” he said. “Such interactions have enriched my academic life and allowed me to view my research from different perspectives. Furthermore, these interactions have allowed me to learn and appreciate other cultures, thus building my emotional and social intelligence.”

Juma, who is pursuing a Ph.D. in recreation, sport and tourism, has researched doping in sport in Africa and Europe. The unique closed-league system and heavy commercialization of sport in the United States offered an exciting new perspective for his research. The possibility of studying with RST Assistant Professor Julian Woolf, one of the world’s leading scholars on the topic, was also enticing. 

“I firmly believe that AHS has some of the best faculty in the country,” Juma said. “Getting a degree in the college counts as a prestigious achievement.” 

Juma also noted that the outstanding diversity of the student body in AHS, where 33 percent of the students belong to historically underrepresented racial and ethnic groups and 149 students are from other countries, makes it easy to feel at home.
Nigerian student Jemimah Bakare, who is pursuing a master’s degree in community health, agrees.

“The campus’ commitment to diversity and inclusion makes it an attractive choice for an international student,” she said. “The sense of belonging and the opportunities for cultural exchange are enriching aspects of the university experience that I believe are essential for personal growth and academic success.”

Bakare’s interests focus on the management of type 2 diabetes and chronic kidney disease in older adults. She was drawn to the strong academic and research reputation of the campus and the college as well as the student body diversity. 

“The academic rigor and quality of instruction have exceeded my expectations,” she said. “Furthermore, the university’s emphasis on research and practical application of knowledge has provided me with valuable hands-on experiences that will undoubtedly contribute to my future career in community health.”

Because of this combination of academic excellence, diversity and translational research opportunities, Bakare would “wholeheartedly” recommend the University of Illinois Urbana-Champaign and the College of Applied Health Sciences to other Nigerian students. In addition, she said, the support services and resources available to international students at the university help to ensure a smooth transition to life in the United States.

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Pamela Hadley honored with Stenberg Endowed professorship

May 6, 2025 | Vince Lara-Cinisomo

Pamela Hadley, center, with faculty and staff of the Department of Speech and Hearing Science (Photo by Craig Pessman)

The daughter of a farmer in rural Illinois, Pamela Hadley had no “schema” for becoming a university professor. But a high school career filled with self-expression helped guide her toward an illustrious academic career that was culminated with a top honor.

Hadley, the head of the Department of Speech and Hearing Science and a professor, was appointed as the inaugural Charles and Kay Stenberg Endowed Professor in Disability Research in a ceremony on April 30.

The appointment is a testament to Hadley’s decades-long dedication to advancing the science of language development in young children, particularly those with developmental language disorder, said Cheryl Hanley-Maxwell, dean of the College of Applied Health Sciences.  

“Pam Hadley has made significant contributions to language science through highly regarded translational research, mentored numerous students into clinical and academic careers, and benefitted the department, university and profession at large through a variety of service activities,” Hanley-Maxwell said.  

The named professorship “is an honor that is accorded to outstanding scholars who have well-established records of excellence in research, teaching, and public engagement,” Hanley-Maxwell added.

The professorship was made possible by a generous endowment from Charles and Kay Stenberg, both Illinois alumni who experienced firsthand the challenges of navigating life with disabilities in an era before the Americans with Disabilities Act. Though they have passed, their legacy lives on through their commitment to disability research and through the continued support of Kay’s brother, Hugh Wishart. 

“Chuck and Kay were passionate about accessibility and believed deeply in supporting research that improves the lives of people with disabilities,” Hanley-Maxwell said.
Hadley also expressed deep gratitude to the Stenberg family, colleagues, students, and family members who shaped her journey. 

“This is rightfully a shared honor,” she said. “I’m profoundly humbled to be named the Charles and Kay Stenberg Professor. The Stenbergs faced and overcame many barriers, and they endowed this professorship to help others do the same.”

Hadley reflected on a life shaped by both personal experience and professional purpose. Raised in rural Henry County, Illinois, she credited her parents for instilling in her a love for inquiry and compassion. Her father, a farmer, encouraged her to solve story problems at dinner. Her mother, a nurse, brought her along on Saturday visits to residents in a skilled nursing facility. “We’d call that volunteering as a conversational partner today,” she joked, noting it was her first exposure to the impact of communication in caregiving.

Her academic journey took her from Augustana College, where she experienced immersive clinical training, to the University of Kansas, where she joined a research preschool program that would shape her scholarly trajectory. 

“It was in that preschool that I first noticed how children with communication disorders were not socially integrated,” she said. That observation led to a research assistantship, publications, and ultimately a Ph.D. in  child language under the mentorship of Professor Mabel Rice.

Pam Hadley has made significant contributions to language science through highly regarded translational research, mentored numerous students into clinical and academic careers, and benefitted the department, university and profession at large through a variety of service activities.

Cheryl Hanley-Maxwell

Dean, College of Applied Health Sciences

Over her career, Hadley has led pioneering longitudinal studies that have reshaped how clinicians and researchers understand early language development. Her work has focused on early identification and intervention for children with Developmental Language Disorder (DLD)—a condition that affects 7 to 10 percent of school-aged children and often goes undiagnosed until it has already begun to impact learning and social development.

She led a groundbreaking multi-site clinical trial, supported by the National Institute on Deafness and Other Communication Disorders, evaluating a parent-implemented language intervention. 

“I’m thrilled to report that the caregiver-implemented intervention resulted in positive effects on vocabulary and grammar,” she said, noting that the professorship would play a critical role in disseminating these findings to clinicians and families.

As head of the Department of Speech and Hearing Science, Hadley led with empathy and pragmatism during the COVID-19 pandemic. She established virtual check-ins, championed remote accessibility, and helped the department resume clinical services quickly and safely. Her leadership style, she said, is grounded in the deep respect she holds for her colleagues and their shared mission: “to promote improved communication and health for individuals with disabilities across the lifespan.”

Throughout the ceremony, attendees were reminded of Hadley’s enduring commitment to education. Undergraduate and graduate students alike benefit from her guidance, both in the classroom and in the lab. As one of the few national experts on early grammatical assessment and intervention, her work translates directly into tools and strategies used by speech-language pathologists and parents.

In concluding her remarks, Hadley acknowledged her most personal source of support—her family. Her husband, Matt Rispoli, a retired SHS faculty member, and their daughters have shared in the journey. 

Watch a video of the investiture ceremony

“They’ve always graciously shared me with my students and my work,” she said, adding that the family’s shared love of hiking serves as a cherished escape from her many professional responsibilities.

As Dean Hanley-Maxwell presented the medallion that accompanies a named professorship, she emphasized what the moment represented: a celebration of achievement, but also a reaffirmation of the university’s mission to foster research that has real-world impact. 

“Pam, your outstanding work has added to the prestige of this college and university,” she said. “We are grateful for and proud of your commitment to helping children with language disabilities get a better start in life.”

Editor’s note:

To reach Vince Lara-Cinisomo, email vinlara@illinois.edu.
 

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Improving clinical practice and quality of life

May 03, 2024 | Anna Flanagan

Speech and Hearing Science Associate Professors Marie Moore Channell and Laura Mattie have long been interested in the development of communication and life skills in individuals with neurodevelopmental and intellectual disabilities.

Channell directs the Intellectual DisAbilities Communication Lab, where her research team works toward a comprehensive understanding of skills that support day-to-day communication for people with Down syndrome in order to identify and develop strategies for supporting their social and academic success. In Mattie’s Development in Neurogenetic Disabilities Lab, research addresses the early development of individuals with Down syndrome and fragile X syndrome. She, too, aims toward promoting the developmental success and well-being of people with these neurogenetic disabilities.

The scholars’ shared interests have led to fruitful collaborations in the past. They led a team of researchers who used a large, national database developed by the Down Syndrome Cognition Project to characterize variability in IQ, executive functioning, adaptive and challenging behavior, and autism symptomatology among individuals with Down syndrome.

In a paper titled “Capturing cognitive and behavioral variability among individuals with Down syndrome: a latent profile analysis,” published in the Journal of Neurodevelopmental Disorders (2021, 13:16), Channell, Mattie and their co-authors describe three latent classes, or subtypes, of people with Down syndrome that emerged from their analyses.

Those in the “normative” group showed a profile of cognition and behavior that is typically represented in the literature on Down syndrome. Those in the “cognitive” group had lower cognitive scores and adaptive behaviors such as self-care and daily living skills than their peers with Down syndrome, along with high rates of autism symptoms.

Those in the “behavioral” group showed cognitive scores and adaptive behaviors similar to their peers with Down syndrome but had high rates of autism symptoms and challenging behaviors such as hyperactivity and conduct problems. Thus, with a large enough sample size, different patterns of autism symptoms and other characteristics can be seen across individuals with Down syndrome. The ultimate goal in precisely characterizing individual variability within Down syndrome is to optimize daily living through targeted treatments and interventions.

Overcoming diagnostic hurdles

Channell and Mattie currently are collaborating as principal and co-principal investigators on a study funded by the National Institutes of Health INCLUDE Project, which supports research related to the health and quality of life of individuals with Down syndrome. Working with researchers at Emory University, Johns Hopkins University and the Kennedy Krieger Institute, their study seeks to increase understanding of the co-occurrence of autism with Down syndrome to improve its diagnosis and treatment.

“There is a stereotype of people with Down syndrome as happy, social people who can’t have autism,” Channell said. “It’s more common than previously thought, but underdiagnosed.”

Interventions and therapies that people with autism receive could be a beneficial add-on to services offered to individuals with Down syndrome. Part of the problem in diagnosing autism in this population is that autism screening tools that were developed for the general population need to be adapted. To work toward the goal of developing better tools to screen for autism in people with Down syndrome, Channell, Mattie and their collaborators are conducting a nationwide survey of caregivers of youth with Down syndrome in which they are completing existing screening tools and other developmental questionnaires. The researchers will then examine and adapt the screening tools as needed so they can be used by practitioners to determine whom to refer for a full autism evaluation.

They are casting a wide net in hopes not only of representing all the varying abilities within Down syndrome, but also of including groups that are not well represented in the existing research.

“Underrepresentation is a big problem in research related to Down syndrome,” Mattie said. “We have a diverse board of stakeholders, are building relationships with the Black Down Syndrome Association, and targeting rural and Hispanic families as well.”

The questionnaires and other screening tools completed by caregivers are just one element of an autism diagnosis. There also is an in-person evaluation component, which is conducted by either developmental behavioral pediatricians or clinical psychologists who are specifically trained in autism diagnostics and assessment, as well as neuropsychological methods. The difficulty with this aspect of diagnosis is two-fold, Mattie said.

“First, the number of developmental behavioral pediatricians and clinical psychologists with this specialized training is limited, so there’s a bottleneck,” she said. “Also, while they may have expertise in autism, they don’t necessarily know about Down syndrome. So the ability to identify a true co-occurring condition is really lacking.”

Channell and Mattie may be conducting the first large-scale study using the broad screening measures doctors and clinicians give to families when autism is first suspected. Theirs may also be the first study that will explore the use of telehealth to conduct diagnostic evaluations of autism in children with Down syndrome.

“If we can figure out how to make that work, we can increase access to evaluations by specialists,” Channell said. They are working with a clinician at Kennedy Krieger, Natasha Ludwig, who will conduct the evaluations of autism in the telehealth sessions, and with Amy Cohen, director of the University of Illinois Autism Clinic, who will review and “score” the evaluations as well to ensure that evaluation tools will lead to consistent results when used by different clinicians.

With the dual focus on developing effective autism screening and diagnostic tools for individuals with Down syndrome and increasing access to specialists who are skilled in both autism and intellectual disability, Channell and Mattie intend to make a significant and lasting impact on improving the quality of life of a population that has historically been underdiagnosed and underserved. That’s good news for the individuals themselves and their caregivers, as well as the scores of clinicians who dedicate their professional lives to providing the best services possible to their clients.

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Homecoming hangout sparked clinical research partnership

May 03, 2024 | Vince Lara-Cinisomo

Amy Brummel planned to catch the Illini’s Homecoming football game against Wisconsin last October and maybe grab some food at the College of Applied Health Sciences’ pregame tailgate. She had no idea it would lead to a research collaboration.

Brummel, a two-time alumna (B.S. in 1994, M.A. in 1997) of the Department of Speech and Hearing Science, has established a clinical research partnership with SHS Assistant Professor Meaghan McKenna to evaluate a literacy intervention protocol  she developed. 

The pairing came about innocuously. Brummel only went to the AHS tailgate after getting an email about a celebration of SHS’ 50th anniversary.

“My husband, Pete (B.S., Agricultural Economics, 1985), my son, Tyler, and I were already going to the football game,” Brummel said. “So I said, ‘Let’s go check out this tailgate and see if any of my classmates are there.’”

Brummel did not find any classmates, but when she got up to get food, she encountered Anna Pucilowski, an SHS teaching assistant professor who just happened to be handing out slices of cake.

“I asked, ‘What is the U. of I. researching in the area of literacy? I’m an SLP that specializes in literacy. So (Pucilowski) connected me with Dr. McKenna. And Dr. McKenna and I have been communicating ever since.”

They’ve been more than communicating. Brummel developed an research-based literacy intervention, so McKenna and Brummel are researching the efficacy of the intervention and are planning to disseminate the findings

“The ultimate goal of the intervention is to increase reading automaticity,” Brummel said. “That just means we’re going to improve the decoding ability, or oral reading fluency, of children. This is different than comprehension. This is pure decoding, sounding out words.”

As Brummel explained, when people read, they read automatically—it should be effortless. But when children are struggling to learn to read, they read sound by sound to decode—consciously retrieving each sound in every single word. 

But Brummel said a literacy crisis—32 percent of fourth graders in the United States are reading below a proficient level—encouraged her to try to do more to help students. In her private practice, Amy’s Academics, parents ask, “What can I do to help my child?”

“I developed this intervention in my clinic. I provide it to parents for daily practice, and it has been extremely effective in improving automaticity and reading outcomes of my clients,” Brummel said.

Automacity is the ability to do things without occupying the mind with the low-level details required, allowing it to become an automatic response pattern or habit, or, simply, reading without thinking. When children can read with automaticity, they think less about sounding out the words, allowing them to think more about comprehending what they are reading. 

As Brummel explained, the intervention is both phonological—manipulating sounds in words—and orthographic—spelling patterns in words—and consists of two phases. The first phase allows for decoding and encoding practice on words with short vowels and what is called “high neighborhood density and high phonotactic probability.” Once automaticity is achieved, the child starts the second phase, which is decoding and encoding words with long vowels, she said. 

“The intervention presents the opportunity to practice reading and spelling words while explicitly studying the orthography of the words and deleting and substituting initial phonemes in words,” Brummel said. “The extra exposure to phonological and orthographic patterns allows the child to obtain the additional practice necessary to create mental orthographic images to increase automaticity in their reading.”

McKenna said the intervention is important because “we need to recognize the contributions (speech-language pathologists) can make to speaking, listening, reading, and writing. Brummel agreed.

“We have such dire statistics for children who are struggling to read,” she said. “There are mental and  emotional health issues as a result of not being able to learn to read in school, as well as decreased academic and occupational outcomes. I believe that learning to read is the most important thing happening in our schools. We need to make sure 100 percent of our students can read.”

Brummel taught phonetics as an undergraduate teaching assistant and researched morphology in multicultural settings as a graduate research assistant. That work inspired her to earn a clinical doctorate in speech-language pathology with a focus on language and literacy. She first developed the intervention in her private practice and provides it to parents for daily practice. 

“It has been extremely effective in improving reading outcomes in my clients. The beauty of it is it’s research-based,” she said. “Dr. McKenna and I are both excited about this intervention because this is the first of its kind. I’ve been using it for years in my clinic, and the outcomes have been amazing. There is nothing like this in the school system, or in the private sector, or anywhere else that I’ve seen.”

Since meeting, Brummel and McKenna have engaged in monthly research practice partnership meetings to evaluate the intervention. They are now recruiting participants and will begin their first study in April.

“If we can do research on this and share it, it’s going to change the lives of children across our country and hopefully help all of these students struggling so they can catch up,” Brummel said. “They will have excellent academic and occupational outcomes, and we’ll help fight this literacy crisis.”

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AHS Get to Know: Laura Mattie, Ph.D.

April 03, 2024 | Ethan Simmons

AHS Get to Know: Laura Mattie, associate professor in the Department of Speech and Hearing Science

Laura Mattie joined the College of Applied Health Sciences in 2015. She leads the Development in Neurogenetic Disabilities Lab, or “DND” Lab. 

How would you describe your primary research interests? 

My primary research interest is learning how young children with neurodevelopmental disabilities develop early social and communication skills to inform parent-implemented early language interventions.

Why did you decide to apply to work at Illinois?

I applied to Illinois because it was one of the only job postings that targeted expertise in children with disabilities and family well-being, which signified that my work was already valued.

What are you working on right now? 

I have 4 main projects right now: 

  • The Power of the Point Project focuses on the predictors of early language development in toddlers with Down syndrome and fragile X syndrome.
  • ASD Screening Tools in Down Syndrome is a large-scale survey of caregivers of individuals 6-18 years old that aims to determine how to best use autism screening tools for this population.
  • The Speech Accessibility Project aims to make voice recognition technology useful for individuals who may have diverse speech patterns and disabilities, including people with Down syndrome.
  • A Foundational Study of Adaptive Behaviors in Individuals with Down Syndrome is a survey of caregivers to learn about the practical, conceptual, and social skills used in everyday life by their children with Down syndrome who are between birth to 22 years old.

What’s a fun fact you’d like to share about yourself? 

I am a twin mom to 15-month-old girls, so much of my free time is chasing after them! When I do have some down time, I enjoy rewatching TV shows like “The Office” and “Parks & Recreation,” reading, and snuggling with our dogs.
 

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Improving clinical practice and quality of life

May 21, 2024 | Anna Flanagan

Laura Mattie and Marie Channel are collaborating on a study funded by the National Institutes of Health INCLUDE Project, which supports research related to the health and quality of life of individuals with Down syndrome

Marie Moore Channell and Laura Mattie (Photo provided)

Speech and Hearing Science Associate Professors Marie Moore Channell and Laura Mattie have long been interested in the development of communication and life skills in individuals with neurodevelopmental and intellectual disabilities.

Channell directs the Intellectual DisAbilities Communication Lab, where her research team works toward a comprehensive understanding of skills that support day-to-day communication for people with Down syndrome in order to identify and develop strategies for supporting their social and academic success. In Mattie’s Development in Neurogenetic Disabilities Lab, research addresses the early development of individuals with Down syndrome and fragile X syndrome. She, too, aims toward promoting the developmental success and well-being of people with these neurogenetic disabilities.

The scholars’ shared interests have led to fruitful collaborations in the past. They led a team of researchers who used a large, national database developed by the Down Syndrome Cognition Project to characterize variability in IQ, executive functioning, adaptive and challenging behavior, and autism symptomatology among individuals with Down syndrome.

In a paper titled “Capturing cognitive and behavioral variability among individuals with Down syndrome: a latent profile analysis,” published in the Journal of Neurodevelopmental Disorders (2021, 13:16), Channell, Mattie and their co-authors describe three latent classes, or subtypes, of people with Down syndrome that emerged from their analyses.

Those in the “normative” group showed a profile of cognition and behavior that is typically represented in the literature on Down syndrome. Those in the “cognitive” group had lower cognitive scores and adaptive behaviors such as self-care and daily living skills than their peers with Down syndrome, along with high rates of autism symptoms.

Those in the “behavioral” group showed cognitive scores and adaptive behaviors similar to their peers with Down syndrome but had high rates of autism symptoms and challenging behaviors such as hyperactivity and conduct problems. Thus, with a large enough sample size, different patterns of autism symptoms and other characteristics can be seen across individuals with Down syndrome. The ultimate goal in precisely characterizing individual variability within Down syndrome is to optimize daily living through targeted treatments and interventions.

Overcoming diagnostic hurdles

Channell and Mattie currently are collaborating as principal and co-principal investigators on a study funded by the National Institutes of Health INCLUDE Project, which supports research related to the health and quality of life of individuals with Down syndrome. Working with researchers at Emory University, Johns Hopkins University and the Kennedy Krieger Institute, their study seeks to increase understanding of the co-occurrence of autism with Down syndrome to improve its diagnosis and treatment.

“There is a stereotype of people with Down syndrome as happy, social people who can’t have autism,” Channell said. “It’s more common than previously thought, but underdiagnosed.”

Interventions and therapies that people with autism receive could be a beneficial add-on to services offered to individuals with Down syndrome. Part of the problem in diagnosing autism in this population is that autism screening tools that were developed for the general population need to be adapted. To work toward the goal of developing better tools to screen for autism in people with Down syndrome, Channell, Mattie and their collaborators are conducting a nationwide survey of caregivers of youth with Down syndrome in which they are completing existing screening tools and other developmental questionnaires. The researchers will then examine and adapt the screening tools as needed so they can be used by practitioners to determine whom to refer for a full autism evaluation.

They are casting a wide net in hopes not only of representing all the varying abilities within Down syndrome, but also of including groups that are not well represented in the existing research.

“Underrepresentation is a big problem in research related to Down syndrome,” Mattie said. “We have a diverse board of stakeholders, are building relationships with the Black Down Syndrome Association, and targeting rural and Hispanic families as well.”

The questionnaires and other screening tools completed by caregivers are just one element of an autism diagnosis. There also is an in-person evaluation component, which is conducted by either developmental behavioral pediatricians or clinical psychologists who are specifically trained in autism diagnostics and assessment, as well as neuropsychological methods. The difficulty with this aspect of diagnosis is two-fold, Mattie said.

“First, the number of developmental behavioral pediatricians and clinical psychologists with this specialized training is limited, so there’s a bottleneck,” she said. “Also, while they may have expertise in autism, they don’t necessarily know about Down syndrome. So the ability to identify a true co-occurring condition is really lacking.”

Channell and Mattie may be conducting the first large-scale study using the broad screening measures doctors and clinicians give to families when autism is first suspected. Theirs may also be the first study that will explore the use of telehealth to conduct diagnostic evaluations of autism in children with Down syndrome.

“If we can figure out how to make that work, we can increase access to evaluations by specialists,” Channell said. They are working with a clinician at Kennedy Krieger, Natasha Ludwig, who will conduct the evaluations of autism in the telehealth sessions, and with Amy Cohen, director of the University of Illinois Autism Clinic, who will review and “score” the evaluations as well to ensure that evaluation tools will lead to consistent results when used by different clinicians.

With the dual focus on developing effective autism screening and diagnostic tools for individuals with Down syndrome and increasing access to specialists who are skilled in both autism and intellectual disability, Channell and Mattie intend to make a significant and lasting impact on improving the quality of life of a population that has historically been underdiagnosed and underserved. That’s good news for the individuals themselves and their caregivers, as well as the scores of clinicians who dedicate their professional lives to providing the best services possible to their clients.

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